The Moment – My Final Blog (Part 2)

August 22nd, 1991. St-Mary’s Hospital. Mother and son (me).

When my mother asked me to write the second part of her final blog, I knew that it would be my eulogy to her.

In her last blog, she describes her many losses. The gradual decline of her health, quality of life, and autonomy. I know from our conversations that this chipping away at her ability to live was the most emotionally taxing part of this whole experience. 

For me, they represented a sequence of little deaths, each accompanied by a period of grief. 

I mourned my mother’s ability to ever feel well and healthy again, and gained a deeper gratitude for the privilege I still possess. 

I mourned my mother’s mental clarity, what she called “Chemo Brain”. A very real and disheartening phenomenon. 

I mourned the deterioration of her physical strength, and her appreciation of her own luminous beauty. First with the effects of treatments on her hair, then the inescapable indignity of a wonky colostomy bag. 

It was hard to see my mother’s ability to read and write without hinderance slowly vanish. 

Harder still, I mourned my mother’s ability to live a pain-free life. That is, until she was placed in palliative care. 

But I was also witnessing something awesome. 

After four years of suffering, anxiety, and cancer eroding my mother’s mind, body, and soul, I discovered what remained; who my mother really was at her core. 

Despite it all, the woman I visited in room 105 was kind, patient, easy-going, and generous. She was lovely. She was love distilled. Not only did these parts of herself survive the process, but the darkness in which they were set made them shine brighter. The bitterness, and the resentment at the cruelty of life that was robbing her of her future, weren’t there. She had her moments of sadness, of shuddering under the weight of all those losses, but these feelings inevitably passed through her. 

My mother in palliative care. Photo taken by me, Christian Daoust.

Among my mother’s many passions was teaching. I would say it was her calling, one she found later in life. She was the kind of teacher who got to know her student’s life stories. The names of their partners, the names of their children, and grandchildren. The trials and tribulations which led them to leave their home countries and come to Quebec. Here’s a little story about my mum. 

Years ago, now, she was beginning her career teaching French as a Second Language at an adult education school. It was mid-December, almost the end of term, and she heard that a student of hers–a young single-mother who was struggling to make ends meet–couldn’t afford to buy her child Christmas presents. The very same day, my mother went out and bought some. She wrapped the presents, and brought them to the school’s director, requesting that they be given anonymously to her student. She told no one about this. The only reason I know it happened is because I was home when she walked in with the packages.

In the grand scheme of things, this small act of kindness is just a drop in the bucket. It certainly didn’t rescue this woman—my mum’s student—from her difficult circumstances, but it did ensure that a child would feel special on Christmas, and I can only imagine how important that is to a parent. 

Photo taken by me, Christian Daoust.

            With my mother’s passing I have lost more than a parent. I have lost a great friend (my very best friend, in fact), a confidante, a font of wisdom and love, my writing partner, my ideal reader, and a vital part of my support network. 

The two of us on Portobello Road, London, UK. 2015. Photo taken by me, Christian Daoust.

            I think that for all who knew her, she was more than one thing. Always more than just a friend, a teacher, a sister, a daughter, a neighbour. If nothing else, that’s something remarkable to aspire to. 

            I love you, mum. The best in me, came from you. Au revoir. 

Christian Daoust

My favourite picture.

Somnum Interruptum

Not too long ago, I went through a strange period when two of my molars abscessed in quick succession and had to be «devitalized»—an alarming term, but the official dental euphemism for killing a tooth by performing a root canal. It was pretty disturbing. And painful!

I remember the dentist saying that our teeth are peculiar body parts because basically, they’re supposed to do their job unnoticed and we resent anything different.

Mine were clamouring for attention (and payed for it!).

Sleep is like that too. It’s effortless and predictable and restorative…until it isn’t. And then it has our attention.

My granddaughter Penelope, losing her fight to stay awake.
My granddaughter Penelope, losing her fight to stay awake.

My son Jeremy and his wife Anne are in that predicament. Sleep—or the lack of it—is devitalizing them. They’re the parents of two young children.

Ah.

The block of battery-recharging time they once called sleep has morphed into a hit and miss latticework of nightly «naplets». The golden standard of 8 or 9 hours of peaceful rest hovers out there like a promise and a torment.

But things should eventually sort themselves out. After all, the causes of their sleep deprivation are external. If my grandchildren can just cooperate, their parents will soon rediscover what it means to lay your head down on a pillow, close your eyes and gently drift off for hours and hours…

Oh God.

What do you do when the causes of sleep deprivation are internal?

That’s where I’m at.

I can’t say with precision when things started to go awry. It must have been incremental.

I’m not an insomniac and haven’t yet asked my physician for a sleep aid, though there are times when I feel like banging down his office door in desperation (usually at 2 in the morning).

Poor sleep, like anemia or migraines or bad knees, is something you learn to live with until you can no longer remember what it was like to feel great.

All men whilst they are awake are in one common world: but each of them, when he is asleep, is in a world of his own. – Plutarch

I wonder if there are as many understandings of sleep as there are people.

My grandson Graeme, napping on me.
My grandson Graeme, napping on me.

For my husband, sleep is escape. He discovered this when he was just a small child, running to his bed and falling asleep under the covers—no matter the time of day— when something had gone wrong or he had misbehaved. And as long as I’ve known him, he’s been able to cat nap several times during a lazy day or even a stressful one, and relishes the thought of bedtime at day’s end, when the comforter (really, that word says it all, doesn’t it?) is like some sort of thick curtain he can pull up over his head to shut out the worrying world.

 

“Sleep is my lover now, my forgetting, my opiate, my oblivion.”
― Audrey NiffeneggerThe Time Traveler’s Wife

 

A couple of friends and family members, who are on anti-depressants, have told me that the medication has turned their sleep into an unpredictable ride through a dreamscape that sometimes borrows from Lovecraft, sometimes from Tarantino—or both—with flashes of Lars Von Trier occasionally thrown into the mix. They tell me that everyday life looks great after such hallucinations.

Another day, another nap.
Another day, another nap (in my arms = heaven)

In the writers’ workshop that I belonged to a decade or so ago, I remember a few enthusiasts who had programmed themselves to awaken from their dreams so that they could record them in a special notebook. At the time, it seemed as futile as trying to catch a cloud; today, it seems more like intentional sleep deprivation.

But maybe that’s because I’ve never set much store in dreams. Besides, the only ones I can remember are the bad ones.

Every dream that anyone ever has is theirs alone and they never manage to share it. And they never manage to remember it either. Not truly or accurately. Not as it was. Our memories and our vocabularies aren’t up to the job. ~Alex Garland

I fall asleep easily. It’s staying asleep that’s so difficult. Every now and then, I sleep like I used to, and wake up feeling so good! But my sleep has become crepe paper thin, and every little sound and movement wakes me up me now. On the worst nights, my eyes spring open and stare, in the dark, at the digital display on the alarm clock: 1:15…2:23…3:10…4:07…

It’s a relief when it finally shows 5:00, because it means that I can slip out of bed and into the shower which, God-bless-it, brings me to life. Though I’ll never again take a good night’s sleep for granted, I’ve also made my peace with my interrupted nights.

Gorgeous autmun moon above our house, August 2015
Gorgeous autumn moon above our house, August 2015

I’ve left behind the quickened pulse, agitation and anxious thoughts swirling in the dark. Instead, I’ve learned to lie quietly, breathe deeply and let my thoughts wander beyond the night sweats, to good things. It’s often in the dark of night that writing ideas—like this one—come to me. Sometimes, I replay in my mind moments or events that gave me joy, until I slip back into fragile sleep.

 

“The night is the hardest time to be alive and 4am knows all my secrets.” 
― 
Poppy Z. Brite

 

 

Before sunrise. A beautiful winter dawn, caught last week.
Before sunrise. A beautiful winter dawn, caught last week.

What I’ve discovered most of all is the quiet solitude of early mornings—those few hours before sunrise (especially in winter).  The life I live before dawn is separate from everything that follows. It’s as though the whole house is mine. I go to the dining room table, where I do most of my work, make a cup of tea or coffee and turn on the computer.

It’s a time of gathering my thoughts, and it’s my favourite time to write. Once everyone else gets going, the bubble bursts and daily life comes flooding in. But until then, I live in the space left behind by fleeing sleep.

 

“Anything seems possible at night when the rest of the world has gone to sleep.” 
― David AlmondMy Name Is Mina

 

I’ve read that insomnia is associated with weight gain, depression and a shortened life span; I hope that my subpar 5-6 hour attempts at sleep won’t cost me that much.

 

There’s a thread that runs through literature which links sleep with death. Edgar Allen Poe lamented: “Sleep, those little slices of death — how I loathe them.”

 

And in the late 20th century, J.M. Coetzee wrote: « “Sleep is no longer a healing bath, a recuperation of vital forces, but an oblivion, a nightly brush with annihilation.” 

 

People who have experienced deep, restful sleep often say I was dead to the world.

 And then there’s Shakespeare’s Hamlet:

 

“To be, or not to be: that is the question: 
Whether ’tis nobler in the mind to suffer
The slings and arrows of outrageous fortune,
Or to take arms against a sea of troubles,
And by opposing end them? To die: to sleep;
No more; and, by a sleep to say we end
The heart-ache and the thousand natural shocks
That flesh is heir to, ’tis a consummation
Devoutly to be wish’d. To die, to sleep;
To sleep: perchance to dream: ay, there’s the rub.

 

I’ve never perceived sleep this way, but I know, from having experienced it twice, that being put under a general anaesthetic is a rehearsal for death. One moment you are, and the next, you are not. I’ve made my peace with that.

Rather, as most of it is experienced in the dark, our sleep connects us to our most primitive, essential selves. Our cave dwelling ancestors sought the safety of cover, and of each other, before closing their eyes to sleep. Young children, who still rely on this instinct, resist our attempts to leave them alone and isolated in their impeccably decorated bedrooms. I was lucky, I always shared a room with my older sister.

Penelope naps with me on her first day in her new home.
Penelope naps with me on her first day in her new home,  summer 2013.

When all is said and done, at day’s end, laying down to sleep is an act of faith and trust in the world and in each other. When we close our eyes, it’s with the belief that no harm will come to us, and that tomorrow will always be…another day.

 

 “Sometimes at night I would sleep open-eyed underneath a sky dripping with stars. I was alive then.” 
― Albert Camus

Night owls
Night owls